Learn about the characteristic signs and symptoms of FOP, an ultra-rare genetic disorder.1
Get connected to others living with FOP and hear their inspiring stories and experiences.
Fibrodysplasia Ossificans Progressiva or FOP is an ultra-rare genetic disorder1 that causes bone to form where it should not – outside of the skeleton and in the soft and connective tissues such as in the muscles, tendons and ligaments.1,2
Getting a diagnosis of FOP is important as it can make a big difference in how your, or your loved one’s, health is managed. Knowing it is FOP means that interventions and treatments that might make FOP worse can be avoided as much as possible and mean you get the appropriate care according to current FOP management guidelines.3
The most classic first sign of FOP is having shortened and turned-in big toes at birth