This website is intended for US Healthcare Professionals only.
This website is intended for US Healthcare Professionals only.

Fibrodysplasia ossificans progressiva (FOP) is a progressive, disabling, ultra-rare genetic disorder characterized by cumulative and irreversible heterotopic ossification (HO) within soft and connective tissues, that can lead to loss of mobility and shortened life expectancy.1–3

Learn about the characteristic signs and symptoms of FOP – Watch this animated video

FOP estimated prevalence

FOP has an estimated prevalence of 1.36 per million4

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Ipsen The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with Fibrodysplasia Ossificans Progressiva and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference DM-0350 NON-US-002452 July 2021