This site is intended for US Healthcare Professionals only.
This site is intended for US Healthcare Professionals only.

fop toes

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare disorder characterized by genetic formation of bone in muscles, tendons, and ligaments. It is a severely disabling, progressively worsening disease that has life-threatening complications, and patients typically have a shortened life expectancy.1

At birth FOP patients may appear normal except for bilateral great toe malformations.

See more about the great toes in FOP.>

Importantly, when FOP is not identified, patients are at risk of receiving inappropriate procedures which can lead to morbidity and which can exacerbate the disease, causing episodes of heterotopic ossification (HO).2

Read more about identifying FOP here >


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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding Fibrodysplasia Ossificans Progressiva. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with Fibrodysplasia Ossificans Progressiva and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference NON-US-002031 December 2020