This site is intended for US Healthcare Professionals only.
This site is intended for US Healthcare Professionals only.


Early identification of FOP is especially important in this disease as it can help both the patient and the healthcare professional avoid disease exacerbation caused by biopsies or intramuscular injections, or other activities discussed here, which can cause a FOP flare-up.

FOP is a clinical diagnosis that can be confirmed with genetic testing.

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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding Fibrodysplasia Ossificans Progressiva. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with Fibrodysplasia Ossificans Progressiva and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference NON-US-002031 December 2020