This site is intended for US Healthcare Professionals only.
This site is intended for US Healthcare Professionals only.

Most Common Differential Misdiagnoses1

  • Progressive osseous heteroplasia
  • Non-hereditary (acquired) heterotopic ossification
  • Lymphedema
  • Osteosarcoma
  • Aggressive juvenile fibromatosis
  • Desmoid tumors
  • Soft tissue sarcoma
  • Ectopic ossifications after trauma, hematoma, or in cancer


  1. Pignolo RJ, et al. Orphanet J Rare Diseases 2011; 6:80. OrphaNet: Fibrodysplasia ossificans progressiva. Available at: Accessed June 13, 2018.
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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding Fibrodysplasia Ossificans Progressiva. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with Fibrodysplasia Ossificans Progressiva and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference NON-US-002031 December 2020