Although you may not know anyone else who’s affected by FOP (Fibrodysplasia Ossificans Progressiva), you are not alone. There’s a strong and vibrant global community of people living with or caring for someone with the condition and you can get in touch with others who may be in a similar situation.
If you are not sure where to start, why not visit the International Fibrodysplasia Ossificans Progressiva Association (IFOPA) website and explore their resources for living with FOP?
Share your practical tips
Do you have any practical tips that you think other people living with acromegaly might benefit from? If so, please send us your tips via this form. Once submitted your suggestion will be reviewed by our expert advisors and considered for inclusion when this site is next updated.
Thank you for taking the time to share your tip, we will evaluate it and it may be added to this website in the future.
Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding Fibrodysplasia Ossificans Progressiva. The information provided here is not intended to replace professional advice.
This website has been developed by Ipsen in collaboration with those living with Fibrodysplasia Ossificans Progressiva and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names.
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