Although you may not know anyone else who’s affected by FOP (Fibrodysplasia Ossificans Progressiva), you are not alone. There’s a strong and vibrant global community of people living with or caring for someone with the condition and you can get in touch with others who may be in a similar situation.
If you are not sure where to start, why not visit the International Fibrodysplasia Ossificans Progressiva Association (IFOPA) website and explore their resources for living with FOP?
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